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The Market Surgery
 The Market Surgery
national health service
The Surgery will be closed for staff training on the last Tuesday of every month between 1.30-2.30pm

WHO ARE THE PRIMARY CARE RESEARCH NETWORK EAST OF ENGLAND

 

The mission of the National Institute for Health Research (NIHR), the research arm of the NHS, is to maintain a health research system in which the NHS supports outstanding individuals, working in world class facilities, conducting leading edge research focused on the needs of patients and the public.

 

The NIHR is funded by the Department of Health.

 

The Primary Care Research Network East of England (PCRN EoE) is one of a family of NIHR national research networks working together with the Comprehensive Local Research Networks (CLRN) to provide a wide range of support to the local research community.  Our Practice participates in research activity and works closely with the Primary Care Research Network East of England , creating more opportunities for more patients to be involved in research should they wish.

 

By building on and extending partnerships, with university academics and the NHS, research collaboration across the East of England is further strengthened.

 

The PCRN EoE also helps our practice by supporting us to recruit and take part in clinical studies through their locally based research nurses and network coordinators.

 

 

WHAT IS PRIMARY CARE RESEACH

 

People use research to try and find the causes of diseases and to find better treatments and services for those diseases and improve patient care.

 

Research is presented in different formats;

  • Completing a questionnaire
  • Requesting the use of your anonymised data
  • Taking part in an interview
  • Testing new treatments, therapies or devices
  • Experiencing new combinations of treatments
  •  

Research studies help to answer specific questions about health and health care.  For example; 

  • whether new treatments or ways of organising services are effective (do they work?)
  • whether those treatments or services are cost-effective (do they give value for money?)
  • how different health problems develop and progress over time – to help gain a better understanding of that health problem
  • the views of patients and health professionals about a particular treatment, intervention or service and how they might be improved

 

PRACTICE INVOLVEMENT IN RESEARCH

 

Research studies help to answer specific questions about health and health care.  For example;

  • whether new treatments or ways of organising services are effective (do they work?)
  • whether those treatments or services are cost-effective (do they give value for money?)
  • how different health problems develop and progress over time – to help gain a better understanding of that health problem
  • the views of patients and health professionals about a particular treatment, intervention or service and how they might be improved
The results of research studies can be of interest to patients and useful to health professionals and managers in the NHS in helping to decide what treatments and services to provide in future.

 

 

PATIENT PARTICICPATION & HOW TO TAKE PART IN RESEARCH

 

There are different ways that patients can become involved in studies our Practice is participating in.

  • A doctor or nurse may talk to you about the study and ask whether you would consider taking part or
  • You will be sent information through the post if we feel that you might be a suitable participant
  • You may read information on the website about a current study and wish to take part by contacting the practice
  •  

Patients who express an interest in finding out more about a study will be asked for their permission to share their name and contact details with the study team.  Some studies require direct contact between participants and the team, others involve contact through a member of practice staff or with a Primary Care Research Network research nurse.

  • Participation in research is entirely voluntary and you have the right to say ‘No’.  Nobody will put pressure on you to take part in research if you do not wish to.  You do not have to give us a reason if you decide not to take part
  • Your care and your relationship with your doctor or nurse will not be affected in any way if you decide not to take part in a research study
  • You will always receive clear information about what taking part in a research study would involve.  The practice will usually provide you with a patient information sheet; then, if you agree to take part, the study team will explain the study to you in more detail and you will have the opportunity to ask questions about it
  • Nobody from outside this practice will be given your contact details or have access to your medical records without your prior consent.  If you do agree to take part in a study, you will be asked to sign a consent form – this will clearly state which parts of your notes (if any) may be looked at for the purposes of the research
  • 
You will not be asked to take part in a large number of studies.  Most researchers are very specific about the criteria that people need to meet in order to enter their study.  Usually this means that only a relatively small number of patients at the practice will be suitable for any one study.

involved

 

 

PATIENT AND PUBLIC INVOLVEMENT (PPI) IN RESEARCH  

 

Information about how patients and members of the public can be involved in helping to influence the shape of research.

 

http://www.crncc.nihr.ac.uk/about_us/pcrn/primary_care_patients

 

http://www.nnuh.nhs.uk/Dept.asp?ID=265

 

http://www.crncc.nihr.ac.uk/about_us/ccrn/west_anglia  

 

 

European Patient Ambassador Programme (EPAP)

 

EPAP has been developed to help patients and carers across Europe understand how healthcare research and guidelines work, how to get involved and engage in advocacy and media activities at any level.

 

http://www.european-lung-foundation.org/EPAP

 

 

RESEARCH AND PATIENT EXPERIENCE SHORT FILMS  

 

Many patients voluntarily take part in research as ‘participants’ in clinical trials or other well designed studies. These trials aim to test how good beneficial treatments might be for people. 

 

 

NIHR Resources  - patients speak about their experiences of being a participant in research

 

A number of short films can be found on the NIHR website.  The video provides a personal insight into primary care research from the perspective of both the researcher and participant.

 

http://www.crncc.nihr.ac.uk/ppi/ppi

 

http://www.crncc.nihr.ac.uk/ppi/taking_part_in_a_study

 

 

Health Talk Online

 

An award winning charity website allowing patients and the public to share experiences of health and illness and taking part in research studies.

 

http://www.healthtalkonline.org/medical_research/

 

 

NHS Choices

 

Comprehensive information about research for patients and the public

 

http://www.nhs.uk/Search/Pages/Results.aspx?___JSSniffer=true&q=RESEARCH

 

http://www.nhs.uk/Conditions/Clinical-trials/Pages/Introduction.aspx

 

 

Clinical Trial Participants: guinea pigs or informed volunteers?

 

The article, authored by a Guardian journalist, uses the patient’s perspective to address some of the common myths and misunderstandings about clinical research.

It explains how volunteers involved in clinical trials are not human guinea pigs, but patients taking an active role in their healthcare, aiming to improve the quality of life for others with similar health conditions.

 

http://www.crncc.nihr.ac.uk/news/news_archive/guardian_guinea

 

 

CURRENT STUDIES AT THE PRACTICE 

 

EPIC -  2 Patients (Cancer Study)
Ascend -  16 Patients (Type II Diabetes)
Clarify -  Long Term Prognostic Determinants in CHD
Super EDEN -  1 Patient
IFG -  Diabetes Prevention Study
ASPECTS -  Young people in CBT after trauma
3Cs -  Cough Study
Flu Swabs -  1-5 per week where appropriate

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


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